Dedicated to serving and supporting the needs of those impacted by a bleeding disorder through education, advocacy, and community.
Some of our goals for the upcoming year include: increasing individual donations, increasing the number of kids we send to camp, improving our social networking ability, strengthening our advocacy efforts, raising greater awareness of bleeding disorders among the general public, and strengthening our special events.
The Virginia Hemophilia Foundation (VHF) formerly known as the United Virginia Chapter of the National Hemophilia Foundation (UVC-NHF) was founded in 1975 by a group of concerned parents, patients, doctors and nurses with the common goal of making life easier for persons affected by hemophilia and related bleeding disorders. At that time, treating bleeding episodes was time consuming and not very efficient. Many bleeding episodes required lengthy hospital stays and left permanent damage. Life was difficult at best and pain was a way of life. Today, treatment is much better and most families are able to manage this condition through home treatment. Hospital stays are few and far between. However, living with a chronic illness still presents challenges. The cost of treating hemophilia can easily run over $200,000 per year. Insurance may be difficult to obtain and job choices are still somewhat limited. VHF continues to have a strong presence and provides a variety of support services, i.e. educational and support programs, advocacy opportunities, an annual meeting, family and summer camps, a quarterly newsletter, medic alert bracelets, seminars for parents, teens and adults, etc.
Licensed Clinical Social Worker since January 1997,
Certificate in Nonprofit Management, Duke University Office of Continuing Studies, August 2003
Emerging Nonprofit Leader Program Graduate – Especially for Nonprofit Organization, June 2009
An excellent opportunity for kids ages 7-17 who have a bleeding disorder or their siblings. It is a perfect opportunity for kids to learn more about their disorder, interact with others with bleeding disorders, and to have fun!
An educational opportunity for the entire family. As well as a great time to meet new friends and reconnect with old friends.
Programs for families with infants or young children with bleeding disorders to get together for educational meetings, peer-to-peer networking, mentoring, and social gatherings
Indirect Public Support HelpIndirect public support represents revenue received through solicitation campaigns. This includes funding United Way and other federated fundraising organizations, but does not include donor designated contributions.
Earned Revenue HelpEarned revenue represents income generated in direct exchange for a product or service.Earned income includes income from government contracts.
Copyright © 2014 The Community Foundation Serving Richmond & Central Virginia7501 Boulders View Drive, Richmond, VA 23225804-330-7400 | www.tcfrichmond.org