Virginia Hemophilia Foundation
410 N. Ridge Rd., Suite 215
Richmond VA 23229
Mission Statement

Dedicated to serving and supporting the needs of those impacted by a bleeding disorder through education, advocacy, and community.

Leadership
CEO/Executive Director Kelly Waters
Board Chair Elizabeth Leftwich
Board Chair Company Affiliation Community Volunteer
Contact Information
Address 410 N. Ridge Rd., Suite 215
Richmond, VA 23229
Telephone 804 740-8643
Fax 804 740-8643
E-mail info@vahemophilia.org
History and Background
Year of Incorporation 1975
Financial Summary
Revenue vs Expense Bar Graph - All Years
Expense Breakdown Bar Chart - All Years
 
 
Projected Revenue $437,546.00
Projected Expenses $374,176.00
Statements
Mission

Dedicated to serving and supporting the needs of those impacted by a bleeding disorder through education, advocacy, and community.

Impact VHF serves the bleeding disorder community throughout the Commonwealth of Virginia.  This year we have touched 100's of lives by:
  1. Strengthening our advocacy presence with a new Advocacy Committee Chair, webinars, and an increase utilization of VoterVoice.
  2. Helping several families in financial crisis with medical bills, rent, utilities, etc.
  3. Continuing our outreach to school personnel and the general community through conference presentations, exhibits, health fairs, and targeted community events.
  4. Offering several quality programs, including summer and family camp, annual meeting, Adult Retreat, Family Overnight, and First Step Picnic.

Some of our goals for the upcoming year include: increasing individual donations, increasing the number of kids we send to camp, improving our social networking ability, strengthening our advocacy efforts, raising greater awareness of bleeding disorders among the general public, and strengthening our special events.

Needs  
What can you do:
1.  Volunteer your time or service
2.  Donate blood or organize a blood drive for hemophilia
3.  Become a member of VHF
4.  Participate in our educational and/or fund raising events
5.  Make a tax-deductible contribution
Background

The Virginia Hemophilia Foundation (VHF) formerly known as the United Virginia Chapter of the National Hemophilia Foundation (UVC-NHF) was founded in 1975 by a group of concerned parents, patients, doctors and nurses with the common goal of making life easier for persons affected by hemophilia and related bleeding disorders.  At that time, treating bleeding episodes was time consuming and not very efficient.  Many bleeding episodes required lengthy hospital stays and left permanent damage.  Life was difficult at best and pain was a way of life. Today, treatment is much better and most families are able to manage this condition through home treatment.  Hospital stays are few and far between.  However, living with a chronic illness still presents challenges. The cost of treating hemophilia can easily run over $200,000 per year.  Insurance may be difficult to obtain and job choices are still somewhat limited. VHF continues to have a strong presence and provides a variety of support services, i.e. educational and support programs, advocacy opportunities, an annual meeting, family and summer camps, a quarterly newsletter, medic alert bracelets, seminars for parents, teens and adults, etc.

CEO Statement
This is an exciting time for VHF.  VHF is financially sound, has seen a significant increase in quality and quantity of programs over the last several years, and has seen greater community participation. In fact, several programs have needed a waiting list and/or have had over 100 participants. We continue to have a strong advocacy presence and outstanding board members who work hard to serve the needs of the bleeding disorder community through education, advocacy, and support for research for a cure.  We are seen by the national hemophilia groups as innovative and progressive.  I hope to work with you as we continue to strengthen and grow VHF’s capacity to serve you. 
Areas of Service
Areas Served
Area
Metro Richmond
Tri-cities Region
Richmond, City
Ashland
Chester
Chesterfield County
Colonial Heights, City
Dinwiddie County
Ettrick
Goochland County
Hanover County
Henrico County
Hopewell, City
Matoaka
Petersburg, City
Powhatan County
Prince George County
Sussex County
Charles City County
Gloucester County
King and Queen County
Lancaster County
Louisa County
Mathews County
Middlesex County
New Kent County
Northumberland County
Charlottesville-Albermarle
Hampton Roads
Northern Neck
Shenandoah Valley
Southside Virginia
Southwest Virginia
In summary, VHF serves the bleeding disorder community for most of the Commonwealth of Virginia with the exception of the counties adjacent to the District of Columbia.
Board Chair
Board Chair Elizabeth Leftwich
Company Affiliation Community Volunteer
Term July 2017 to June 2018
Email info@vahemophilia.org
Board CoChair
Board CoChair Sarahbeth Spasojevich
Company Affiliation Community Volunteer
Term July 2017 to June 2018
Email info@vahemophilia.org
Board of Directors
Board Members
NameAffiliation
Kelly Cartwright Community Volunteer
Monika Eiden Community Volunteer
Megan Lawson Community Volunteer
Jean Parnell Bon Secours
Michael Silva Community Volunteer
Daniel Warren Community Volunteer
Michael Welshonce Community Volunteer
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 9
Hispanic/Latino 0
Native American/American Indian 0
Board Demographics - Gender
Male 3
Female 6
Governance
Board Term Lengths 2
Board Term Limits 3
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100
Percentage Making In-Kind Contributions 100
Number of Full Board Meetings Annually 4
Standing Committees
Board Development / Board Orientation
Executive
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Scholarship
Finance
Legislative
Other Boards
The tables below contain information about other groups that advise this nonprofit on operations and projects.
Executive Director
Executive Director Kelly Waters
Experience
Master of Social Work, 1995 ,   University of North Carolina, Chapel Hill, NC
Bachelor of Science, Psychology, Minor in Human Services, 1993, James Madison University, Harrisonburg, VA; Summa Cum Laude, Outstanding Senior Psychology Student

 Licensed Clinical Social Worker since January 1997, 

Certificate in Nonprofit Management, Duke University Office of Continuing Studies, August 2003

Emerging Nonprofit Leader Program Graduate – Especially for Nonprofit Organization, June 2009

 
Senior Staff
NameTitle
Heather Conner Program and Communication Director
Staff
Full Time Staff 2
Part Time Staff 0
Volunteers 30
Contractors 2
Retention Rate 100
Plans
Organization has a Fundraising Plan? Under Development
Organization has a Strategic Plan? Yes
Years Strategic Plan Considers 3
Date Strategic Plan Adopted 2011
Management Succession Plan? Yes
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
Programs
Description  

An excellent opportunity for kids ages 7-17 who have a bleeding disorder or their siblings. It is a perfect opportunity for kids to learn more about their disorder, interact with others with bleeding disorders, and to have fun! 

Budget $15,000.00
Description  

An educational opportunity for the entire family.  As well as a great time to meet new friends and reconnect with old friends. 

Budget $6,000.00
Description  

Programs for families with infants or young children with bleeding disorders to get together for educational meetings, peer-to-peer networking, mentoring, and social gatherings

Budget $3,000.00
Description
Events focused specifically on adults with bleeding disorders and their loved ones, which includes health and wellness retreats, social events, and educational programs.
Budget $6,000.00
Description
Resources and events that encourage active living.  These can include financial assistance for enrolling in fitness programs and activities, as well as opportunities for members to participate and experience a variety of sports like bowling, hiking, fishing, swimming, golf, and baseball.
Budget $10,000.00
Fiscal Year
Projected Revenue $437,546.00
Projected Expenses $374,176.00
Spending Policy N/A
Form 990s
IRS Letter of Exemption
Detailed Financials
Expense Allocation
Fiscal Year201620152014
Program Expense$320,016$258,620$256,761
Administration Expense$48,346$37,772$29,134
Fundraising Expense$16,970$13,637$9,563
Payments to Affiliates------
Total Revenue/Total Expenses1.361.581.26
Program Expense/Total Expenses83%83%87%
Fundraising Expense/Contributed Revenue4%3%3%
Assets and Liabilities
Fiscal Year201620152014
Total Assets$914,067$772,408$587,173
Current Assets$692,865$557,115$377,702
Long-Term Liabilities$0----
Current Liabilities$12,086$7,880$2,627
Total Net Assets$901,981$764,528$584,546
Short Term Solvency
Fiscal Year201620152014
Current Ratio: Current Assets/Current Liabilities57.3370.70143.78
Long Term Solvency
Fiscal Year201620152014
Long-Term Liabilities/Total Assets0%0%0%
Capital Campaign
Currently in a Capital Campaign? No
State Charitable Solicitaions Permit
Solicitations Permit
Solicitations Permit 11/2016View
Comments
Foundation Comments
  • Financial information provided from audited financial statements.
  • Audited financial statements and IRS 990 for FY 2011 prepared by Hostetler Stott, CPA.
  • Audited financial statements and IRS 990s for FY 2010 and 2009 prepared by Thomas C. Stott, CPA.
  • Revenue from "Foundations and Corporations" also includes support from individuals.