Down Syndrome Association of Greater Richmond, Inc.
1504 Santa Rosa Road
Suite 124
Richmond VA 23229
Mission Statement

The Down Syndrome Association of Greater Richmond is a 501(c)3 nonprofit organization that benefits the lives of individuals with Down syndrome and their families through individual and family support, education, community awareness and advocacy.

Web and Social Media
Leadership
CEO/Executive Director Terri Lancaster
Board Chair Angela Cimmino
Board Chair Company Affiliation VCU
Contact Information
Address 1504 Santa Rosa Road
Suite 124
Richmond, VA 23229
Telephone 804 447-4713
Fax 800 725-1549
E-mail infor@dsagr.org
History and Background
Year of Incorporation 1983
Financial Summary
Revenue vs Expense Bar Graph - All Years
Expense Breakdown Bar Chart - All Years
 
 
Projected Revenue $325,000.00
Projected Expenses $336,000.00
Statements
Mission

The Down Syndrome Association of Greater Richmond is a 501(c)3 nonprofit organization that benefits the lives of individuals with Down syndrome and their families through individual and family support, education, community awareness and advocacy.

Impact
DSAGR's Top 4 Accomplishments:
  1. DSAGR is proud to have expanded their service area to Charlottesville and Williamsburg.  This expansion is allowing DSAGR so serve families in a previously underserved area.
  2. DSAGR held its fifth Annual Educational Conference in February 2017, which featured nationally-recognized speakers and attracted over 300 educators, parents, and social services professionals. The conference was supported by the Virginia Department of Education, VCU Department of Special Education and Disability Policy, VCU's Center for Family Involvement and TTAC.
  3. DSAGR launched its first Summer Employment Academy in 2017.  This program was done in partnership with VCU RRTC, Chesterfield County Public Schools Transition Services, and seven local businesses.  High School students learned a wide variety of skills during this program.
  4. DSAGR's Learning Program is in its sixth year and currently offers two levels of early literacy learning. This program is done in partnership with VCU's School of Occupational Therapy.
  5. The Learning and Activity Center was opened in January 2017.
 
DSAGR's Strategic Plan Priorities (2016 - 2018):
  1. Leadership and Board Development: Continue the momentum and overall growth of the Down Syndrome Association of Greater Richmond's Board of Director.
  2. Management: Ensure staff growth to support organizational growth.
  3. Programming: Ensure that the DSAGR's programs fulfill ongoing and future needs to meet mission.
  4. Fundraising: Establish a sustainable fundraising stream.
  5. Marketing: Increase community awareness of DSAGR.
  6. Membership: Establish a communication plan
  7. Capital Campaign: Create a research plan to develop a Capital Campaign
 
 
Needs
  1. Marketing
  2. Staff Funding
  3. Volunteers
  4. Employment for Individuals with Down syndrome
  5. Human Resources
Please contact us at director@dsagr.org for full details.
Background

Established in 1983 by a dedicated group of people who sought to improve the lives of those affected by Down syndrome in the Greater Richmond area, the DSAGR has grown enormously in its 30 years, from a small, informal group, to serving over 450 families with children with Down syndrome and an additional 4,300 persons associated as extended family members and community partners such as local businesses, non-profits, and hospitals. In 2016, the DSAGR welcomed 23 new babies and provided these families support and resources through a cadre of successful programs. Membership to the DSAGR is free and welcoming to all families in the Greater Richmond area. The DSAGR is affiliated with the following national Down syndrome organizations: National Down Syndrome Congress, National Down Syndrome Society, and Down Syndrome Affiliates in Action.

CEO Statement

DSAGR serves all counties north of Richmond, VA, up to Fredericksburg, south of Richmond to the North Carolina border, west of Richmond to Charlottesville, and eastof Richmond to Hampton Roads.

DSAGR offers overs 130 different opportunities that assist individuals and families affected by Down syndrome in reaching their full potential. Featured programs and events include, but are not limited to all of the following:

 

·        Education Initiatives

o   Education meetings and seminars

o   Disability Education Conference

o   Learning Program (Early Literacy) for children ages 5 – 9

o   Transition Bootcamp for High School students

o   Summer Employment Academy (New for 2017)

o   Adult Employment Skills Development Series

o   Pre-School Education Series

o   DS 101 Webinar for Educators

·        Social Programs and Events

o   Hands Up Playgroup for young children under 5

o   Adventurers group for ages 6-12

o   FunQuest for teens

o   Fun4Life for those over 21

o   Grandparent to Grandparent

o   Pizza and Dance Party

o   Holiday Party

o   U of R Basketball and Squirrel’s Baseball games

o   Dads Appreciating Down Syndrome (D.A.D.S.) Group

o   Moms on a Mission (M.O.M.S.

 

·        First Call (new and expectant parent support and information) Medical Outreach

·        Community Engagement and Education Scholarships

·        Read UP! Reading initiative/Lending library

·        Advocacy

·        DSAGR Charlottesville Community Group

·        DSAGR Williamsburg Community Group

Through our education workshops and conferences, we offer education support and strategies for children with Down syndrome from pre-school to life after high school. The events are also well attended by many DSAGR parents, educators, administrators, medical professionals and members of the disability community. DSAGR offers one annual Disability Education Conference.  “From PossAbilities to Practical Applications” serves to strengthen the education of children with disabilities.  

In the fall of 2013, DSAGR launched the Learning Program to offer supplemental instruction for children ages 4 to 7 with Down syndrome. The program is offered once a month for eight months using curriculum provided by the Learning Program from the Down Syndrome Foundation of Orange County California. The program complements formal instruction in literacy and math and has occupational and speech therapy components. During the session, children participate in hands-on learning centers taught by experienced professionals. Parents receive separate instruction on how to work with their child at home to complement the formal instruction in school. The Learning Program is in its 3rd year and currently serves 23 families.

In 2015, DSAGR launched the Transition Boot Camp to help parents learn how to advocate for appropriate transition services within the IEP process. The program was expanded in 2016-2017 to include a student component. This was offered in partnership with VCU’s “I’m Determined” program.

In 2017, DSAGR launched its first Summer Employment Academy to help high school students gain individualize work experiences. This was done in partnership with VCU’s RRTC, Chesterfield County Schools and seven local businesses.

Areas of Service
Areas Served
Area
Tri-cities Region
Metro Richmond
Charlottesville-Albermarle
Southside Virginia
Hampton Roads
Northern Neck
Greater Richmond area including the Tri-cities west to Charlottesville, north to Fredericksburg, east to Williamsburg.
Board Chair
Board Chair Angela Cimmino
Company Affiliation VCU
Term Jan 2015 to Dec 2018
Email acimmino@comcast.net
Board CoChair
Board CoChair Michael Carpenter
Company Affiliation HCA
Term Jan 2016 to Dec 2018
Board of Directors
Board Members
NameAffiliation
Debbie Abernathy Abernathy Construction
James Blinzinger J.D.Federal Government
Mark Boone Dominion Virginia Power
Michael Carpenter Carpenter Health and Wellness
PRESIDENT Angela Cimmino VCU
Secretary Christine Crawley VCU's T/TAC
Traver Hardesty BB&T Secuties
Kevin Hughes Pie Tech
Shelley Lantz True Health
TREASURER Richard Lewis CPAKeiter CPAs
Marco Mejias Booz Allen Hamilton
Shawn Northington At Home Health Care
Mary Otero R.N.Bon Secours
Alison Southard Powhatan Public Schools
Board Demographics - Ethnicity
African American/Black 2
Asian American/Pacific Islander 0
Caucasian 11
Hispanic/Latino 1
Native American/American Indian 0
Board Demographics - Gender
Male 7
Female 7
Governance
Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 75
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100
Percentage Making In-Kind Contributions 100
Number of Full Board Meetings Annually 10
Standing Committees
Capital Campaign
Finance
Executive
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Other Boards
The tables below contain information about other groups that advise this nonprofit on operations and projects.
Executive Director
Executive Director Terri Lancaster
Experience

Professional Experience

Down Syndrome Association of Greater Richmond, Executive Director 2014 - present

Ramp Access Made Possible by Students (R.A.M.P.S.)                                                    2011-2013

Program Director

Supported student fundraising and provided leadership to eight high school R.A.M.P.S. clubs, managed client data base, determined fundraising to cost statistics, identified, researched and wrote grants (secured $20.5K in 12 months), represented organization at community outreach events, assessed families of elderly and disabled individuals to determine accessibility needs, organized and supervised student ramp builds, and managed ramp materials recycling.

 

Down Syndrome Association of Greater Richmond (DSAGR)                                        2010-present

President (2010-2011)

Oversaw Board of Directors and all committees, developed agendas and facilitated meetings, managed $150K budget, negotiated contracts, established new programs, ensured compliance with all organizational bylaws and regulations, advocated for individuals with Down syndrome, educated members on legislative issues, and represented DSAGR at national conferences.

 

Enrichment Committee Chair and Volunteer (2012 to 2013)

Managed program budget and payments, analyzed program performance and data analysis for the Board of Directors, and secured a $20K grant to fund the program.

 

Hope Church                                                                                                                                      2007-present

Mission Trip Leader (2007 to present)

Organize and lead annual medical/dental mission trips to the Dominican Republic and Tanzania, responsible for providing cross-cultural training, develop budget, manage travel logistics and finances, and foster relationship building among team members and those we serve.

 

Hope 5K and Kids Mile Coordinator (2013)

Created budget, managed event committees, and facilitated meetings.  The event drew over 400 runners and raised $15K for local charity.

Former CEOs
NameTerm
Allison Wixted Pharm.D.July 2012 - Dec 2013
Senior Staff
NameTitle
Nancy Boim Finance Director
Lyn Dodge RNProgram Director
Kim Owens P.E.Education Director
Staff
Full Time Staff 1
Part Time Staff 3
Volunteers 800
Contractors 1
Retention Rate 100
Plans
Organization has a Fundraising Plan? Under Development
Organization has a Strategic Plan? Yes
Years Strategic Plan Considers 3
Date Strategic Plan Adopted Jan 2016
Management Succession Plan? Under Development
Organization Policy and Procedures Under Development
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
Affiliations
AffiliationYear
HandsOn Greater Richmond2012
Partnership for Nonprofit Excellence2010
Awards
Awards
Award/RecognitionOrganizationYear
Outstanding Event Communications for DSAGR's 2009 Buddy WalkNational Down Syndrome Society2010
Programs
Description
Visit www.dsagr.org for full program descriptions.
 
First Call - Provides support for new families who have given birth to a baby with Down syndrome.  Current information regarding development and health issues is provided along with a mentor for the first three years of the child's life.  This is a very tender and emotional time so DSAGR provides support for these families so they can provide the best care possible for their new child.
 
First Call requires between $10K and $12K to run each year.
 
 
Long Term Success First Call Committee served over 20 new parents.
Description
The Learning Program provides early literacy one Saturday a month to children ages 3 - 9.  This helps level the educational gap in school to increase their opportunities to learn alongside their typical peers.  Parents also participate by attending a separate class to learn how to implement the program at home and how to transfer these techniques into their child's daily school learning.
 
The transition boot camp educates parents on what a good transition program can be and equips them with the tools to work with their child's school to create the best possible transition program for their child.  There is a huge gap in what should happen and what actually does happen within the school setting.  
These programs cost upwards of  $30K to run per year
 
 
Description DSAGR's social programs provide opportunities for social experiences with peers within the community.  These programs foster friendships, independence and community experiences to help improve self-esteem and community involvement.  All people with Down syndrome are valued members of their communities and we want the community to value them.  Many of our new families come to DSAGR through our social groups and they become valued members and continue to receive services throughout their life.  These programs cost between $20K and $25K to run each year.
Description Summer program to provide individualized employment experiences to high school students with Down syndrome.
Population Served Adolescents Only (13-19 years)
Budget $18,000.00
Short Term Success Improved Transition IEP's and employment skills development while still in school.
Long Term Success Students will have more success in finding employment of their choosing when they exit high school.
Fiscal Year
Projected Revenue $325,000.00
Projected Expenses $336,000.00
Spending Policy Income Only
Form 990s
IRS Letter of Exemption
Detailed Financials
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201520142013
Foundation and
Corporation Contributions
$16,300$30,500$28,000
Government Contributions$0$0$0
Federal------
State------
Local------
Unspecified------
Individual Contributions$31,616$183,991$170,958
--$3,408$3,807
$23,365$23,840$12,470
Investment Income, Net of Losses$1,129--$1,462
Membership Dues------
Special Events$240,480$15,157--
Revenue In-Kind------
Other--$2,023$135
Expense Allocation
Fiscal Year201520142013
Program Expense$192,622$187,624$155,187
Administration Expense$46,162$27,804$50,865
Fundraising Expense$36,340$10,012$8,546
Payments to Affiliates------
Total Revenue/Total Expenses1.141.151.01
Program Expense/Total Expenses70%83%72%
Fundraising Expense/Contributed Revenue13%4%4%
Assets and Liabilities
Fiscal Year201520142013
Total Assets$294,505$247,579$212,386
Current Assets$260,877$246,620$211,968
Long-Term Liabilities$0--$2,187
Current Liabilities$25,248$15,250$12,188
Total Net Assets$269,257$232,329$198,011
Short Term Solvency
Fiscal Year201520142013
Current Ratio: Current Assets/Current Liabilities10.3316.1717.39
Long Term Solvency
Fiscal Year201520142013
Long-Term Liabilities/Total Assets0%0%1%
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years? No
State Charitable Solicitaions Permit
Solicitations Permit
Solicitations Permit Application 12/2015View
2015 VDACS Solicitation Registration LetterView