Down Syndrome Association of Greater Richmond, Inc.
7501 Boulders View Drive
Suite 201
North Chesterfield VA 23225
Mission Statement DSAGR strives to improve the quality of life of individuals with Down syndrome and their families. We provide access to current and accurate information on Down syndrome. We also foster programs that focus on education, community services, public awareness, medical issues, research, advocacy, legal issues and parenting.
Web and Social Media
Leadership
CEO/Executive Director Terri Lancaster
Board Chair Sean Ryan
Board Chair Company Affiliation The Hodges Partnership
Contact Information
Address 7501 Boulders View Drive
Suite 201
North Chesterfield, VA 23225
Telephone 804 525-7731
Fax 800 725-1549
E-mail dsagrinfo@yahoo.com
History and Background
Year of Incorporation 1983
Financial Summary
 
 
Projected Revenue $246,250.00
Projected Expenses $271,025.00
Statements
Mission DSAGR strives to improve the quality of life of individuals with Down syndrome and their families. We provide access to current and accurate information on Down syndrome. We also foster programs that focus on education, community services, public awareness, medical issues, research, advocacy, legal issues and parenting.
Impact
DSAGR's Top 4 Accomplishments:
  1. DSAGR is proud to have attracted over 1,400 participants to its 2015 9th Annual Step UP for Down Syndrome 5K & Family Festival, which raised over $155,000 to improve the quality of life of individuals with DS and their families in the Greater Richmond area.
  2. DSAGR held its Third Annual Educational Conference in February 2015, which featured nationally-recognized speakers and attracted over 300 educators, parents, and social services professionals. The conference was supported by the Virginia Department of Education, VCU Department of Special Education and Disability Policy, VCU's Center for Family Involvement and TTAC.
  3. DSAGR is also pleased to announce the expansion of services to the Charlottesville community. This is our first community group and we will be starting our First Call program at UVA Hospital and Martha Jefferson Hospital.
  4. DSAGR's Learning Program is in it's third year and currently offers two levels of early literacy learning. Expansion to Level three is expected in 2016 along with a Transition Bootcamp which is beingdeveloped in partnership with VCU-RRTC.
 
DSAGR's Strategic Plan Priorities (2013 - 2015):
  1. Program & Services Priority: Increase family and community participation and involvement by enhancing current services and developing new programs, based on feedback, that support and educate our families and community.
  2. Revenue Development Priority: Grow DSAGR's revenue by expanding our donor base through continued strengthening of the development committee and securing a minimum of two new sustainable funding streams, such as: Annual Campaign, 100% Board Giving, Corporate Sponsors, Grant Opportunities and Community-Based Benefits.
  3. Board & Leadership Development Priority: Build an effective and diverse organization through leadership development and committee member recruitment with a goal of 100% board member participation on committees and actively contributing to fundraising activities.
 
 
Needs
Please contact us at dsagdirector@gmail.com for full details.
Background
Established in 1983 by a dedicated group of parents who sought to improve the lives of those affected by Down syndrome in the Greater Richmond area, the Down Sydrome Association of Greater Richmond (DSAGR) has grown enormously in its 30 years. It has grown from a small, informal group, to now serve over 250 families with 10 successful programs along with providing the community with educational opportunities through two annual conferences.
Areas of Service
Areas Served
Area
Tri-cities Region
Metro Richmond
Charlottesville-Albermarle
Southside Virginia
Greater Richmond area including the Tri-cities west to Charlottesville, north to Fredericksburg, east to Williamsburg.
Board Chair
Board Chair Sean Ryan
Company Affiliation The Hodges Partnership
Term Jan 2014 to Dec 2016
Email sryan@hodgespart.com
Board of Directors
Board Members
NameAffiliation
Debbie Abernathy Abernathy Construction
Jeff Britt McGuire Woods Consulting
Michael Carpenter Carpenter Health and Wellness
Vice-President Angela Cimmino VCU
Secretary Christine Crawley VCU's T/TAC
TREASURER Michael High CPAAltria Companies, Retired
Jennifer Krajewski J.D.Office of the Virginia Attorney General
Steve LaGanke M.B.A.Dupont
Eleonora Link Community Volunteer
Angela Poole RNKidz Kare at Home
PRESIDENT Sean Ryan The Hodges Partnership
Alison Southard Powhatan Public Schools
Monica Wilmore Virginia Business Systems
Board Demographics - Ethnicity
African American/Black 1
Asian American/Pacific Islander 0
Caucasian 14
Hispanic/Latino 2
Native American/American Indian 0
Board Demographics - Gender
Male 5
Female 11
Governance
Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 75
Written Board Selection Criteria? Under Development
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100
Percentage Making In-Kind Contributions 100
Number of Full Board Meetings Annually 9
Standing Committees
Capital Campaign
Finance
Executive
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Other Boards
The tables below contain information about other groups that advise this nonprofit on operations and projects.
Executive Director
Executive Director Terri Lancaster
Experience

Professional Experience

Ramp Access Made Possible by Students (R.A.M.P.S.)                                                    2011-2013

Program Director

Supported student fundraising and provided leadership to eight high school R.A.M.P.S. clubs, managed client data base, determined fundraising to cost statistics, identified, researched and wrote grants (secured $20.5K in 12 months), represented organization at community outreach events, assessed families of elderly and disabled individuals to determine accessibility needs, organized and supervised student ramp builds, and managed ramp materials recycling.

 

Down Syndrome Association of Greater Richmond (DSAGR)                                        2010-present

President (2010-2011)

Oversaw Board of Directors and all committees, developed agendas and facilitated meetings, managed $150K budget, negotiated contracts, established new programs, ensured compliance with all organizational bylaws and regulations, advocated for individuals with Down syndrome, educated members on legislative issues, and represented DSAGR at national conferences.

 

Enrichment Committee Chair and Volunteer (2012 to 2013)

Managed program budget and payments, analyzed program performance and data analysis for the Board of Directors, and secured a $20K grant to fund the program.

 

Hope Church                                                                                                                                      2007-present

Mission Trip Leader (2007 to present)

Organize and lead annual medical/dental mission trips to the Dominican Republic and Tanzania, responsible for providing cross-cultural training, develop budget, manage travel logistics and finances, and foster relationship building among team members and those we serve.

 

Hope 5K and Kids Mile Coordinator (2013)

Created budget, managed event committees, and facilitated meetings.  The event drew over 400 runners and raised $15K for local charity.

Former CEOs
NameTerm
Allison Wixted Pharm.D.July 2012 - Dec 2013
Senior Staff
NameTitle
Kim Owens P.E.Program Director
Staff
Full Time Staff 1
Part Time Staff 3
Volunteers 500
Contractors 1
Retention Rate 100
Plans
Organization has a Fundraising Plan? Under Development
Organization has a Strategic Plan? Yes
Years Strategic Plan Considers 2
Date Strategic Plan Adopted May 2013
Management Succession Plan? Under Development
Organization Policy and Procedures Under Development
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
Affiliations
AffiliationYear
HandsOn Greater Richmond2012
Partnership for Nonprofit Excellence2010
Awards
Awards
Award/RecognitionOrganizationYear
Outstanding Event Communications for DSAGR's 2009 Buddy WalkNational Down Syndrome Society2010
Programs
Description
Visit www.dsagr.com for full program descriptions.
 
First Call - Provides support for new families who have given birth to a baby with Down syndrome.  Current information regarding development and health issues is provided along with a mentor for the first three years of the child's life.  This is a very tender and emotional time so DSAGR provides support for these families so they can provide the best care possible for their new child.
 
First Call requires between $10K and $12K to run each year.
 
 
Long Term Success First Call Committee served over 20 new parents.
Description
The Learning Program provides early literacy one Saturday a month to children ages 3 - 9.  This helps level the educational gap in school to increase their opportunities to learn alongside their typical peers.  Parents also participate by attending a separate class to learn how to implement the program at home and how to transfer these techniques into their child's daily school learning.
 
The transition boot camp educates parents on what a good transition program can be and equips them with the tools to work with their child's school to create the best possible transition program for their child.  There is a huge gap in what should happen and what actually does happen within the school setting.  
These programs cost upwards of  $30K to run per year
 
 
Description DSAGR's social programs provide opportunities for social experiences with peers within the community.  These programs foster friendships, independence and community experiences to help improve self-esteem and community involvement.  All people with Down syndrome are valued members of their communities and we want the community to value them.  Many of our new families come to DSAGR through our social groups and they become valued members and continue to receive services throughout their life.  These programs cost between $20K and $25K to run each year.
Fiscal Year
Projected Revenue $246,250.00
Projected Expenses $271,025.00
Spending Policy N/A
Form 990s
IRS Letter of Exemption
Detailed Financials
Revenue SourcesHelpThe financial analysis involves a comparison of the IRS Form 990 and the audit report (when available) and revenue sources may not sum to total based on reconciliation differences. Revenue from foundations and corporations may include individual contributions when not itemized separately.
Fiscal Year201420132012
Foundation and
Corporation Contributions
$30,500$28,000--
Government Contributions$0$0$0
Federal------
State------
Local------
Unspecified------
Individual Contributions$183,991$170,958$41,792
$3,408$3,807--
$23,840$12,470--
Investment Income, Net of Losses--$1,462$1,128
Membership Dues------
Special Events$15,157--$119,817
Revenue In-Kind------
Other$2,023$135--
Expense Allocation
Fiscal Year201420132012
Program Expense$187,624$155,187$108,734
Administration Expense$27,804$50,865$27,237
Fundraising Expense$10,012$8,546--
Payments to Affiliates------
Total Revenue/Total Expenses1.151.011.20
Program Expense/Total Expenses83%72%80%
Fundraising Expense/Contributed Revenue4%4%0%
Assets and Liabilities
Fiscal Year201420132012
Total Assets$247,579$212,386$231,164
Current Assets$246,620$211,968$231,164
Long-Term Liabilities--$2,187--
Current Liabilities$15,250$12,188$35,387
Total Net Assets$232,329$198,011$195,777
Short Term Solvency
Fiscal Year201420132012
Current Ratio: Current Assets/Current Liabilities16.1717.396.53
Long Term Solvency
Fiscal Year201420132012
Long-Term Liabilities/Total Assets0%1%0%
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years? No
State Charitable Solicitaions Permit
Solicitations Permit
Solicitations Permit Application 12/2015View
2015 VDACS Solicitation Registration LetterView