Down Syndrome Association of Greater Richmond, Inc.
7501 Boulders View Drive
Suite 201
North Chesterfield VA 23225
Mission Statement DSAGR strives to improve the quality of life of individuals with Down syndrome and their families. We provide access to current and accurate information on Down syndrome. We also foster programs that focus on education, community services, public awareness, medical issues, research, advocacy, legal issues and parenting.
Web and Social Media
CEO/Executive Director Terri Lancaster
Board Chair Sean Ryan
Board Chair Company Affiliation The Hodges Partnership
Contact Information
Address 7501 Boulders View Drive
Suite 201
North Chesterfield, VA 23225
Telephone 804 525-7731
Fax 800 725-1549
History and Background
Year of Incorporation 1983
Financial Summary
Projected Revenue $205,350.00
Projected Expenses $215,475.00
Mission DSAGR strives to improve the quality of life of individuals with Down syndrome and their families. We provide access to current and accurate information on Down syndrome. We also foster programs that focus on education, community services, public awareness, medical issues, research, advocacy, legal issues and parenting.
DSAGR's Top 4 Accomplishments (July 2012-July 2013):
  1. DSAGR is proud to have attracted over 1,000 participants to its 2013 7th Annual  Step UP for Down Syndrome 5K & Family Festival, which raised over $105,000 to improve the quality of life of individuals with DS and their families in the Greater Richmond area.
  2. DSAGR held its Second Annual Educational Conference in February 2014, which featured nationally-recognized speakers and attracted over 300 educators, parents, and social services professionals. The conference was supported by the Virginia Department of Education, VCU and Health Diagnostic Laboratory.
  3. DSAGR is also pleased to announce that it is the community partner on a film project featuring individuals with Down syndrome and their families that was chosen to receive a 2013 Virginia Commonwealth University Community Engagement Grant in May 2013. DSAGR will be working with VCU's Departments of Genetics and Film to produce a documentary film to inform parents, service providers, and students about Down syndrome that will be distributed both locally and nationally.
  4. DSAGR's Learning Program was introduced this year with the support of a Grant from The Global Down Syndrome Foundation.  DSAGR is the only Affiliate to receive funding from Global 2 years in a row. 
DSAGR's Strategic Plan Priorities (2013 - 2015):
  1. Program & Services Priority: Increase family and community participation and involvement by enhancing current services and developing new programs, based on feedback, that support and educate our families and community.
  2. Revenue Development Priority: Grow DSAGR's revenue by expanding our donor base through continued strengthening of the development committee and securing a minimum of two new sustainable funding streams, such as: Annual Campaign, 100% Board Giving, Corporate Sponsors, Grant Opportunities and Community-Based Benefits.
  3. Board & Leadership Development Priority: Build an effective and diverse organization through leadership development and committee member recruitment with a goal of 100% board member participation on committees and actively contributing to fundraising activities.

Please contact us at for full details.
Established in 1983 by a dedicated group of parents who sought to improve the lives of those affected by Down syndrome in the Greater Richmond area, the Down Sydrome Association of Greater Richmond (DSAGR) has grown enormously in its 30 years. It has grown from a small, informal group, to now serve over 250 families with 10 successful programs along with providing the community with educational opportunities through two annual conferences.
Areas of Service
Areas Served
Tri-cities Region
Greater Richmond area including the Tri-cities west to Charlottesville, north to Fredericksburg, east to Williamsburg.
Board Chair
Board Chair Sean Ryan
Company Affiliation The Hodges Partnership
Term Jan 2014 to Dec 2015
Board of Directors
Board Members
Ashley Amey O.T.Community Volunteer
Dustin Carpenter Chesterfield County Police Department
Christine Crawley VCU's T/TAC
TREASURER Michael High CPAAltria Companies, Retired
Colleen Jackson-Cook Ph.D.Virginia Commonwealth University
VICE PRESIDENT Jennifer Krajewski J.D.Office of the Virginia Attorney General
Steve LaGanke M.B.A.Dupont
IMMEDIATE PAST PRESIDENT Cynthia Lantz Parent to Parent of Virginia
Eleonora Link Community Volunteer
Suzanne McKeever SLPPrivate Speech Therapist
Anne Meacham Community Volunteer
Mary Otero BSN, RN, NE-BCBon Secours St. Mary's Hospital
Angela Poole RNKidz Kare at Home
Otis Robinson Health Diagnositc Laboratory, Inc.
PRESIDENT Sean Ryan The Hodges Partnership
Monica Wilmore Virginia Business Systems
Board Demographics - Ethnicity
African American/Black 1
Asian American/Pacific Islander 0
Caucasian 14
Hispanic/Latino 1
Native American/American Indian 0
Board Demographics - Gender
Male 5
Female 11
Board Term Lengths 3
Board Term Limits 2
Board Meeting Attendance % 75
Written Board Selection Criteria? Under Development
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100
Percentage Making In-Kind Contributions 100
Number of Full Board Meetings Annually 9
Standing Committees
Capital Campaign
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Other Boards
The tables below contain information about other groups that advise this nonprofit on operations and projects.
Executive Director
Executive Director Terri Lancaster

Professional Experience

Ramp Access Made Possible by Students (R.A.M.P.S.)                                                    2011-2013

Program Director

Supported student fundraising and provided leadership to eight high school R.A.M.P.S. clubs, managed client data base, determined fundraising to cost statistics, identified, researched and wrote grants (secured $20.5K in 12 months), represented organization at community outreach events, assessed families of elderly and disabled individuals to determine accessibility needs, organized and supervised student ramp builds, and managed ramp materials recycling.


Down Syndrome Association of Greater Richmond (DSAGR)                                        2010-present

President (2010-2011)

Oversaw Board of Directors and all committees, developed agendas and facilitated meetings, managed $150K budget, negotiated contracts, established new programs, ensured compliance with all organizational bylaws and regulations, advocated for individuals with Down syndrome, educated members on legislative issues, and represented DSAGR at national conferences.


Enrichment Committee Chair and Volunteer (2012 to 2013)

Managed program budget and payments, analyzed program performance and data analysis for the Board of Directors, and secured a $20K grant to fund the program.


Hope Church                                                                                                                                      2007-present

Mission Trip Leader (2007 to present)

Organize and lead annual medical/dental mission trips to the Dominican Republic and Tanzania, responsible for providing cross-cultural training, develop budget, manage travel logistics and finances, and foster relationship building among team members and those we serve.


Hope 5K and Kids Mile Coordinator (2013)

Created budget, managed event committees, and facilitated meetings.  The event drew over 400 runners and raised $15K for local charity.

Former CEOs
Allison Wixted Pharm.D.July 2012 - Dec 2013
Senior Staff
Kim Owens P.E.Program Director
Full Time Staff 0
Part Time Staff 2
Volunteers 500
Contractors 3
Retention Rate 50
Organization has a Fundraising Plan? Under Development
Organization has a Strategic Plan? Yes
Years Strategic Plan Considers 2
Date Strategic Plan Adopted May 2013
Management Succession Plan? No
Organization Policy and Procedures No
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
Outstanding Event Communications for DSAGR's 2009 Buddy WalkNational Down Syndrome Society2010
Visit for full program descriptions.
GAC = Government Action Committee: The GAC's goal is to provide DSAGR members with information regarding legislative issues of importance to the group and to advocate for our members regarding these issues. 
Long Term Success First Call Committee served over 20 new parents.
Fiscal Year
Projected Revenue $205,350.00
Projected Expenses $215,475.00
Spending Policy N/A
Form 990s
IRS Letter of Exemption
Detailed Financials
Expense Allocation
Fiscal Year201320122011
Program Expense$155,187$108,734$83,793
Administration Expense$50,865$27,237$24,728
Fundraising Expense$8,546----
Payments to Affiliates------
Total Revenue/Total Expenses1.011.201.29
Program Expense/Total Expenses72%80%77%
Fundraising Expense/Contributed Revenue4%0%0%
Assets and Liabilities
Fiscal Year201320122011
Total Assets$212,386$231,164$165,865
Current Assets$211,968$231,164$165,865
Long-Term Liabilities$2,187--$5,967
Current Liabilities$12,188$35,387--
Total Net Assets$198,011$195,777$159,898
Short Term Solvency
Fiscal Year201320122011
Current Ratio: Current Assets/Current Liabilities17.396.53--
Long Term Solvency
Fiscal Year201320122011
Long-Term Liabilities/Total Assets1%0%4%
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years? No
State Charitable Solicitaions Permit
Solicitations Permit
Solicitations Permit 5/2014View